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Waardenburg syndrome is a genetic condition that causes Coop’s deafness. But it also affects pigment in places like hair and eyes which is part of his beautiful blue! | Beth Leipholtz
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It’s been a minute since we talked about Waardenburg syndrome, which is Coop’s diagnosis. Now that he’s old enough to understand it, he requested a car chat about it. Waardenburg Syndrome affects about 1 in 40,000 people. It can affect pigment and impact hearing. For Coop, it’s the reason behind his white hair streak and unbelievably blue eyes, as well as his deafness. There are 4 types of Waardenburg and 6 known gene associations (likely more that haven’t been discovered). Genetic testing didn’
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I was born with Waardenburg Syndrome, which is a rare genetic condition. One of the symptoms of this syndrome is deafness. . . . #deaf #deaflove #deafcommunity #deafawareness #asl #cochlearimplant #deaftalent #signlanguage #hearingaid #spreadlove #faizylegend #rememberyouareuniue #justbeyou #waardenburg #waardenburgsyndrome | Faiz Jamal
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Beth Leipholtz from Minnesota is candid about her son living with Waardenburg syndrome. It's a genetic condition that affects the coloring of skin, hair, and eyes, according to the Cleveland Clinic. It can also cause hearing loss, which is something the family manages. Despite his differences, Coop is thriving as the star of his mom's social media pages. | Inside Edition
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I was born with Waardenburg syndrome. The symptoms I have include deafness, vitiligo, blue eyes, and white patches of hair. My purpose is to spread awareness and encourage people to embrace who they are. #WaardenburgSyndrome #SpreadAwareness #EmbraceYourself #SelfLove #VitiligoPride DeafPride UniqueBeauty BornThisWay LoveWhoYouAre | Faizy Legend
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