Every person with CF deserves access to timely diagnosis, quality care, and community support. In this video, Dr. Jennifer Taylor-Cousar explains how health inequity has contributed to disparities for people of color with CF, including delayed diagnosis, decreased access to treatments and care, and more frequent hospitalizations. Tanisha Cunningham, an adult with CF and parent of a child with the disease, openly shares her personal experience and how she advocated for her son’s diagnosis. We are
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There is still no cure for cystic fibrosis. And until every person with this disease can live a long, healthy life, we’ll keep raising CF awareness every day of the year. That’s why on 65 Roses Day earlier this week, we were honored to be featured on the Nasdaq Tower in Times Square, New York City. Thank you to everyone in the CF community for your unwavering support. | Cystic Fibrosis Foundation
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‘Doctors told me, ‘It will be a painful death.’ Instead of feeling sorry for myself, I made history.’: Man shares journey with Cystic Fibrosis, becomes youngest person with CF to complete marathon’
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“The gratitude I have for every single person that has ever been involved with the Cystic Fibrosis Foundation, I am forever, forever indebted to them.” As we celebrate 65 years of progress, Margarete and Marc Cassalina share stories from the more than 20 years they’ve been involved with the Foundation – from their initial phone call with the Greater New York chapter to the discovery of new treatments and their gratitude for the cystic fibrosis community. | Cystic Fibrosis Foundation
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👻👻👻👻👻👻MAD CON 6👻👻👻👻👻👻 SATURDAY SEPTEMBER 30 ➖ 10am-5pm (We…
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