Nos héros de Paris sont au rdv! #coursedesheros #paris2025 Domaine de Saint Cloud, Sèvres | Kleefstra Syndrome France
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Nos héros de Paris sont au rdv! #coursedesheros #paris2025 Dom…
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Guillaume et jeanne à la marche des maladies rares 💜💜💜💜💜💜 | Kleefstra Syndrome France
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Guillaume et jeanne à la marche des maladies rares 💜💜💜💜💜💜 | Kleefstra Syndro…
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Klinefelter syndrome: Video, Causes, & Meaning | Osmosis
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Kleefstra syndrome Community on Reels
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🎃 Halloween and Kleefstra Syndrome 💜 We know that Halloween can be a tricky time for some families affected by Kleefstra Syndrome. The noisy decorations, flashing lights, and costumes can be overwhelming for children and adults with sensory sensitivities. So, if your loved one isn’t a fan of spooky season — please know you’re not alone. 💜 We’re sending love and understanding to all KS families who may find this time challenging. And for those who enjoy the fun — we hope you have a safe, happy
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🎃 Halloween and Kleefstra Syndrome 💜 We know that Halloween can be a …
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🧬 Did you know… Kleefstra Syndrome is caused by a change — either a deletion or a mutation — in the EHMT1 gene, found on chromosome 9? That’s why we’re sharing 9 facts about Kleefstra Syndrome throughout November 💙 💬 How many of our 9 facts do you think you already know? Stay tuned to find out! 👀 Follow along to learn more, raise awareness, and help shine a light on the incredible people and families in our KS community. ✨ #KleefstraSyndromeUK #RareDisease #DidYouKnow #Chromosome9 #Kleefstra
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🧬 Did you know… Kleefstra Syndrome is caused by a change …
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💙 Some news that has truly lifted our wonderful charity this week… 💙 We’ve been awarded a fantastic £10,000 grant from a charitable trust that prefers to stay out of the spotlight. While they choose to give quietly, we hope you'll join us to give them a very warm, heartfelt thank you. Their support will have a direct and transformative impact on our plans for the 2026's KSUK Family Conference. For many in our community, the conference is a lifeline — a chance to meet others walking a similar p
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💙 Some news that has truly lifted our wonderful charity this week… 💙 We’…
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