Eddie Vedder and Jill Vedder founded the EB Research Foundation to find a cure for EB, a rare and life-threatening genetic skin disorder that attacks the body inside and out. #ComeSayHi to Eli during the ABC WE Day broadcast tonight at 8pm ET and help make EB a thing of the past: https://pj.lnk.to/EV_EBFp | Pearl Jam
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Featuring Eddie Vedder and a community fighting to cure a rare disease, Matter of Time shows what happens when art and science collide. Streaming February 9 on Netflix. | EB Research Partnership
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EB Research Partnership co-founder, Eddie Vedder, shares his perspective on the remarkable progress being made on our journey to cure EB. 🦋✨ To the brave, resilient, and incredible EB community, you inspire us every single day. To everyone who wants to get involved – now is this time! All donations made to the #WingsofChange campaign will be DOUBLED up to $250,000. Learn more and donate at https://give.ebresearch.org/eddievedder | EB Research Partnership
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EB Research Partnership co-founders Eddie Vedder & Jill Vedder share how inspired they are by the EB community. There is remarkable momentum being made on our journey to find a cure for EB – and beyond. This #GivingTuesday, your gift can create a monumental impact - thanks to a incredible match from a generous donor, every donation up to $250,000 will be DOUBLED! Every dollar raised supports life-saving research for Epidermolysis Bullosa and helps drive meaningful change for the entire rare dise
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